'Rally 4 Roberts' fundraiser to be held this Saturday
Most young men don’t find themselves in a life-and-death battle at the age of 23, but that is exactly where Brayden Roberts of Augusta is currently, fighting MDS.
Myelodysplastic syndromes (MDS) are a family of rare disorders in which the bone marrow fails to make enough healthy red blood cells, white blood cells or platelets. This is caused because the bone marrow is producing lots of underdeveloped, or immature, cells that have an abnormal shape, size or look. These are called blast cells. Most experts agree that MDS is a form of blood and bone marrow cancer.
Studies suggest that 12,000 to 15,000 MDS cases are newly diagnosed annually in the U.S., and an estimated 50,000 to 75,000 people currently live with MDS. The exact number of people living with MDS is unknown.
Brayden was diagnosed in June of this year following a bone marrow biopsy.
His mother Shannon shared that most people have a bone marrow percentage less than 100, but Brayden’s was at 40 percent, that of a 60-year-old. According to KU Medical in Kansas City, Brayden is the only person known on earth to have MDS and the GATA2 gene, a transcription factor involved in stem cell maintenance with key roles in hematopoietic development. GATA2 mutations are associated with a variety of inherited and acquired immune disorders including myelodysplastic syndrome and acute myeloid leukemia.
Shannon advises that her son’s case has been called “a one in a million” cases. And because the KU facility in Kansas City is a teaching hospital, the staff is excited to be working Brayden’s case.
Family and friends have circled the wagons in support for the young man.
He was at the threshold of his adult life and career, recently having been accepted into the Electricians Union in Wichita.
“His life is on hold right now. A blessing is that he was still living at home with us. Our family, friends and faith will help him get through this.”
Brayden is scheduled to have chemotherapy and will have a bone marrow transplant on Oct . 9th. He will be required to stay near the hospital, in Kansas City for 100 days. He won’t be home until Jan. 7, 2019.
Friends of the family wanted to help defray costs of treatments.
A Rally 4 Roberts Fundraiser will be held this Saturday, with approximately 300 motorcycles, jeeps, and other vehicles lined along Fourth Street in Augusta from 8 to 11 a.m. Participants will leave around 10 a.m. to drive through Beaumont, Latham, Derby, and into Wichita, ending with a live and silent auctions to help with Brayden’s cancer treatments.Registration opens at 8 a.m., all vehicles are welcome. The entry fee is $20 and pre-registration only $25. A Rally 4 Robets T-shirt is included with the registration. Additional shirts will be available for $20.
The run will begin at Bricks Bar, 409 S. State Street. There will be a Dart Run, along with the auctions, and a 50/50 drawing after the run.
All proceeds will benefit a young man in the fight of his life.
To learn more about MDS, go to: https://www.aamds.org/